Thursday, April 19, 2007

Destination: Cleveland

This is less a road trip, more a mission. It has been several years since Roni and I embarked upon a Road Trip together. We used to travel lightly - a case of water, a case of ginger ale, a toothbrush and some pyjamas each. The last time Roni and I took a true road trip, we threw all that, plus some juice boxes, water and pop into a cooler, some sleeping bags into the back and all the Tootsie Rolls 6 kids could want. Now we've added a box of sterile medical supplies, and a cooler of medication. A Flometric pump. A telescopic pole on a 30" base. Roni's laptop so she can work and 14 bottles of pills between us. Times sure have changed.

We picked 'the best' line at Customs, crossing from Canada into the U.S. Well, it seemed like a good choice. Neither Roni, nor I believe in regret. My philosophy is that one must consider all the information that's available at the time and make the best decision he can. That said, I regret that I chose this lane.

First, I had to explain the pole. Then the pump. And the cooler of medications (all in original packaging with original labels from the pharmacy). "I guess you got all those needles and stuff, too, then?" he drawled, rummaging through the box of tubing and syringes. "I use a needle-less system," I explained, flashing the intravenous port embedded below my clavicle. The packages in the boxes look like "needles and stuff", but technically, they're not. He didn't seem to care about the distinction.

Since beginning a regimen of TPN nutrition and IV medication I have travelled between Canada and the U.S. on many occasions. Why, just last month, Michelle, our two brothers and I entered the U.S. at a different border crossing, with all my usual paraphernalia, without any difficulty at all...well, except having to explain different citizenship and last names even though we are siblings.

Finally, we were allowed to enter. It's a road trip. Let the games begin! A sign in western New York state proved we were in The Zone after we both interpreted it the same way and made the same joke about it. Soon after that, at the same time, we made the same jokes at the end of a story. We kill each other, we're so funny!

Roni related a story about an online chat she was participating in recently. As she told me what she 'said' she moved her fingers in the air above the dashboard, imitating typing. I asked her to stop since it was evoking a memory from high school typing class. We had the same teacher. Her name was Ms....Ms...Ms...B.....also taught phys. ed....Ms. B. Curses! How do I inevitably get sucked into the remember the name of the person who....on these trips?

Soon, we found ourselves crossing into Pennsylvania. Roni has history with Pennsylvania. She loves the state so much that she has difficulty leaving it. She gets lost in Pennsylvania...every time. On that last road trip we took; again last year, in Philadelphia; the year before that, with Lori.

She wanted to drive, but I told her I was fine. I wasn't going to take any chances. I had to get to Ohio. Eventually, we stopped for dinner. We ordered and went to get our drinks at the soda fountain. I filled my cup 2/3- full with Dr. Pepper then added a little 7-Up, then topped it off with some more Dr. Pepper. I can't remember the last time I did that.

"What's that called?" Roni asked. "Mud-something. Muddy-something. Dirty..." Curses, it's that damn game again. We walked to a table in the nearly-empty restaurant. Just as I turned toward our table, I spotted a boy of about 10-years old at another table. I was thinking of approaching him to ask what it's called when you mix a bunch of different soft drinks together and then, I had it. I opened my mouth, but I'd lost the word. Roni encouraged me to retrace my steps to try to remember.

"That never works," I told her. But I did it anyway. I made the turn, looked at the boy and blurted out,"Swamp-water."

In Cleveland, we arrived at the hotel and Lori was waiting for us. After we got the rooms set up, I looked at Roni and said "Burnham."
"That's it," she agreed. "Ms. Burnham." (I also pulled out Ron Griffin's name, previously only identified as the guy who drove the brown Chevette). Turned out that Lori wasn't getting our Smokey and the Bandit bit, which confirmed it was a full-out 'You-had-to-be-there'.

   

Mahogany and Mirrors

The Cleveland Clinic is like a city inside Cleveland. The Cleveland Clinic Police headquarters are located across from our hotel. The hospital spans an area of 6 city blocks by 3 blocks. There are several sites under construction as the facility expands. To say the organization is impressive is an understatement.

A shuttle bus took us to the International Patient Center to check in and receive my itinerary. The lobby of the International Patient Access Center immediately bestows a feeling of trust and confidence upon the patient. The polished marble floor reflected our images. Mahogany-clad walls with mantles, mirrors and showcases interspersed, displayed various gifts from patients: Ming Vases, Fabergé eggs and the like. It was a little intimidating.

My Registration Agent started the process inside her spacious office. I was asked to verify the info: My name: check. Address: oops, that wasn't me. Birthdate: oops, again. Email address: mine. The Agent made the corrections to the info then introduced me to my Financial Agent. They had all the correct info on me in this office. Next, I met Marina, my Concièrge. She escorted us to the first appointment and arranged a driver for the following day.

The day before, Roni presented me with a gift of Kick-it-up-a-Notch socks. Regular readers know well the Summers' obsession with Kick-Ass footwear and accessories. Refer also to:Kicking II . I had chosen a kind of Pippi Longstocking look for the day.

Back in the hotel, after the set of investigations, I contacted my Patient Coordinator to clarify my schedule for the next day. I also had to return calls to some of the staff who'd been trying to reach me in Ontario over the past 4 hours.

The Cleveland Clinic: It's technologically advanced. It's a world leader. The Ambassadors in the hallways greet each passerby with a cheerful "Good morning" reminiscent of the Monty Python bit. The atmosphere exudes Excellence, with capital E. Behind the mahogany, under the Ming vases, after the Diplomat patient-base has gone home, it's just like other outfits: misplaced data and records, communication barriers and conflict from the blends of formal and informal groups. It's not smoke and mirrors, it's mahogany and mirrors. It's actually kind of comforting, you know?

Having our own driver is a nice touch,too.

   

Mission: Reconn - Accomplished

We loaded up the car before our driver arrived. After 36 hours, the remaining Swampwater got tossed out, along with the usual collection of half-finished drinks I always leave in my wake.

I passed Roni in the lobby again without recognizing her. Her hair is growing back. I was so used to seeing her with no hair, or wearing a toque or scarf, it's strange to see her sporting a crew cut.

We arrived at the M-entrance. Roni had apparently done some exploring while I was out of commission yesterday. She led the way to the Metabolic Institute.

After another diagnostic investigation, the surgeon declared me a suitable candidate to have a gastric pacemaker re-inserted. We left with a commitment to receive the treatment and care that I need.

I handed the keys to Roni for the drive home. I was in no shape to drive. The relief in the car was palpable. Here's some of my thoughts on that drive:

It was good that I had done so poorly on the clinical tests to qualify for the treatment;
I told you so, Ontario's Ministry of Health;
Must be the lime-green socks!

We called John to tell him the good news...and left a message. We called Michelle...and left a message. We called Mom and Dad, and Dad was home. Through Pennsylvania, I didn't dare fall asleep with Roni at the wheel. I didn't want to wake up in Altoona!

Roni trusted me to drive from the restaurant to the gas station. "I know you," she warned. "You won't get out of the car when you come back."
"I promise, promise, pinky-swear that I will let you drive after I gas up," I promised. The pinky-swear locked it, I think.

We talked with Lori, and Joe, who said at first that he was OK to talk, but during the call, admitted he was up in the air, and it would be better to talk later. Then Jay.

Across the border without incident and home. We were tired.
Now we wait while the surgeon writes up the treatment plan, the finance department costs it out then sends it to me.

There's light at the end of the tunnel...and it's not a train.


Sunday, April 15, 2007

OWHA Provincials

The OWHA Provincial Champions will be crowned at the end of this weekend. This Dolphins team finished among the top 15 teams in Ontario.

It's a significant achievement for our first-year team to advance to this round. Unfortunately, The Dolphins were eliminated in the second round by Woodstock.

Congratulations on a successful season!


At press time, Woodstock was playing in the Semi-Final game.